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Creutzfeldt-Jakob Disease (CJD)

CJD is a rare but sadly fatal condition that affects the brain with most people dying within a year of the symptoms starting. These symptoms include; a loss of memory and intellect, change of personality, slurred speech and loss of co-ordination and balance. There are four main types of CJD:

  • Sporadic CJD – although the most common form of CJD, the precise cause is still unknown. Most cases occur in older adults, with the average symptoms developing around 60-65 years of age. Sporadic CJD is still very rare in the UK, affecting only 1 or 2 in every million people in the UK.
  • Variant CJD – likely caused by consuming meat infected with Bovine Spongiform Encephalopathy (BSE – widely known as ‘mad cow disease’), although since the discovery of the link in 1996, strict rules now prevent such meat entering the food chain. Although the incubation period can be very long (over 10 years), there have only been 177 recorded case in the UK to date.
  • Familial or Inherited CJD – is a very rare genetic condition with the symptoms first developing in people in their 50’s. It affects around 1 in every 9 million people in the UK.
  • Latrogenic CJD – is where the infection is accidently spread from someone living with CJD, via a medical or surgical procedure. However, due to increased awareness of these risks, Latrogenic CJD is now thankfully very rare.

There is no current cure for CJD.

If you have CJD we will support you to have the care that suits you best. We include your family and friends when possible, because they know you and, with your permission, can provide us with additional information about you, information that will help us to ensure you do things you enjoy. As well as having your bedroom with an ensuite bathroom, there are shared areas in Marbrook which offer quiet spaces or areas to be more active. The homely feel and accessible kitchens create a real sense of comfort and belonging.

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