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Dementia with Lewy Bodies

People living with Dementia with Lewy Bodies (DLB) not only experience symptoms with their memory and judgement, but also likely to have difficulties recognising objects and judgements to where they are in space (visual perception). They may also experience:

  • Tremors, stiff limbs and slowed movement
  • Hallucinations
  • Problems sleeping
  • Fainting and unsteadiness

People with this condition can change unpredictably from states or alertness to drowsiness or staring into space from one hour to another.

It is not currently clear why the Lewy Bodies protein inside brain cells builds up deposits or exactly how they damage the brain, but these deposits are also found in people living with Parkinson’s Disease. 100,000 people in the UK are estimated to live with Dementia with Lewy bodies.

Dementia with Lewy Bodies can be hard to live with, for the person with the disease and their family. Many people with DLB feel afraid when they experience hallucinations and have an unusual rhthym to their day. What we can do is support the individual by understanding how it feels for them and by taking the time to learn what interest they have and bring them alive again. This could be an interest in cars, baking, cinema, dancing or any number of other activities. Spending time to reassure and step inside their shoes means we can make a difference and support people to continue being ‘who they are’.

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